First responder becomes heart patient, raising awareness this Heart Month
She says she wishes she took signs more seriously, now needing a machine to keep her alive
She says she wishes she took signs more seriously, now needing a machine to keep her alive
She says she wishes she took signs more seriously, now needing a machine to keep her alive
As someone who loves taking care of other people, Alyssa Rau has a hard time being taken care of.
She's worked as a flight paramedic for the last eight years, including the first several months after moving to the Piedmont Triad. She and her husband, Joshua Rau, relocated to Lexington from Montana in April of 2023, as Joshua took on a pastor role at Hedrick's Grove Reformed United Church of Christ.
Alyssa Rau said between being in her 40s and the move, she felt tired and even out of shape, often having to catch her breath on walks and when speaking. But when she got sicker and went to the hospital, she quickly learned her own diagnosis for her symptoms was way off.
"The doctor says, 'Well, your heart failure looks stable.' And I went, 'My what?'" she said. "I told them, 'No, I think you have the wrong patient.'"
It turned out the left ventricle of her heart was failing, causing her to retain fluid and constantly be out of breath. After just a few months of testing, Alyssa was told she only had a life expectancy of two years if they didn't act quickly toward a transplant or other procedures.
"My husband and I have been married just a couple of years. We wanted more time," she said. "We decided I would rather make my 50th birthday. I’ve got kids and stepdaughters and grandkids."
By December, the tests leading up to a heart transplant showed Alyssa had too many antibodies in her blood, meaning there was a less than 10% chance of finding a heart her body would not reject. That was when she was told the LVAD was an option, which stands for left ventricular assist device.
"I was certified to transport LVADs, so I knew kind of the side from somebody who takes care of people with them," she said. "I didn’t understand the patient side of it all."
She underwent a successful open heart surgery in January to implant the LVAD. Luckily, between her prior medical experience and her husband's two-decade career as an EMT, they got the wires, medications and checklists down quickly.
Alyssa Rau could live with the LVAD for the next 20 or 30 years and said the daily challenges it brings is worth it.
"It’s just a new lease, a new lease of life," she said. "God woke me up today, and I’m gonna do the best I can with it. I always had that attitude with flying or being on an ambulance or whatever it was. I woke up today, so I’m gonna do the best I can."
The Raus post health updates on Alyssa's Caring Bridge site, linked here. They're also raising money to fund their sudden medical expenses, which will now last Alyssa's lifetime. You can contribute to their GoFundMe here.